A conversation with . . . Jennifer?
Find me over at my colleague Denise Schipani’s blog today. The conversation may be with me but you can imagine who we’re talking about!
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A vigil for Jessica
Jessica is scheduled for a procedure in the morning. Routine, in its way, but nothing is ever routine with her anymore. If it ever was. You used to think it would get easier. But it doesn’t. You get understanding, yes, and you know what to do and where to stand, and you long ago made…
Carnations for Jessica
So. Wow. I wrote “For Jessica” as a way to describe to friends what is happening with my daughter and how I’m feeling about it, since it’s very hard for me to talk about it. Then I shared the link on Twitter and Facebook. Of the few hundred people to whom I’m linked by…
On reading Tolkien
Jessica and I are reading the Lord of the Rings series. A couple of months ago, looking for something to do on a weekend, I asked if she would like to watch the movies. “I do not know,” she said. “Okay,” I said. “How about we watch the first one and if you don’t like…
On things you’d think I would know by now
Jessica is opening her Christmas presents. Some of them are things she picked out for herself that I’ve wrapped and put under the tree. She pulls the paper back from a book and asks, perplexed, “Am I supposed to be surprised by this?” She can’t remember what she has picked out and what she hasn’t….
After the diagnosis
In the blog comments on Rethinking what you believe, a writer, Rebecca, says, “With the initial wound of the TSC [tuberous sclerosis complex] diagnosis still fresh for us, I have shied away from examining any belief. Because, frankly, anything I have ever believed about this world now seems a fallacy.” When Jessica was born, I…