A conversation with . . . Jennifer?
Find me over at my colleague Denise Schipani’s blog today. The conversation may be with me but you can imagine who we’re talking about!
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A life in dragons
“I will try to like dragons,” Jessica says. We are standing in the China Pavilion at Epcot, because despite my deep aversion to the Disneyfication of the world, Jessica loves Disney. Specifically, the Walt Disney World Resort. So we go every now and then, and I always enjoy it because someone else…
On not being quiet
On Wednesday Jessica had an early release day from school and so we went into the studio and made some glass. Jessica is a glass artist, an eighteen-year-old senior in high school, my daughter and my ward. She is cognitively impaired and through a painful and too-lengthy guardianship process, her father and I proved to…
On the view from the other side
We are watching a movie, a romantic comedy, and I don’t even remember the title right now because the movie doesn’t matter; the movie never mattered, it is just the thing we are doing together when I look up to see that Jessica is crying. I have no idea why; there is nothing we have…
The Vanishing Twin
Sometimes I hear the echo of my son’s laughter. I never bore a son; I should have, but I had a miscarriage. He was a twin to my daughter, and it is a loss no one acknowledged at the time because everyone was focused on trying to save Jessica. I can only grieve it years…
On growing up in hospitals
I wrote this during Jessica’s recent hospital stay, so don’t worry, she’s not back in the hospital. We are in Jessica’s hospital room and she is in pain, but it’s an hour before she can have any more meds, a fact that I don’t argue with the nurses over although honest to zeus you…
On negotiation
We’re getting ready in the morning, and Jessica pops into the kitchen where I’m gathering my keys. Me: Here, let me help you with you hair. Jessica: What’s wrong with it? Me: It needs to be a little neater. Jessica: Like how neat does it need to be? Me: It needs to be 100% neat….