A conversation with . . . Jennifer?
Find me over at my colleague Denise Schipani’s blog today. The conversation may be with me but you can imagine who we’re talking about!
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On the trouble with the truth
I am looking at the neurosurgeon’s business card. I’m supposed to call the number this morning to schedule Jessica’s surgery. I will talk to June, whom I have talked to before, and she will be very kind, and it will be very easy, in the sense that she will not be a pain in the…
On lies of omission
I posted about last week’s essay on Facebook, and a friend who is dealing with her own such situation wrote, “I don’t know how you keep doing it, keep feeling lucky and keep going. Some days, Jennifer, every step is such agony, and the lack of balance and fairness stuns me into stillness.” I spend…
On what life teaches us
A friend of mine has been diagnosed with one of those diseases that could kill him in a month or it might hold off for a while. Understandably he has been thrown by this, the uncertainty as much as the diagnosis. How do you live when you know the end is coming, but you don’t…
After the diagnosis
In the blog comments on Rethinking what you believe, a writer, Rebecca, says, “With the initial wound of the TSC [tuberous sclerosis complex] diagnosis still fresh for us, I have shied away from examining any belief. Because, frankly, anything I have ever believed about this world now seems a fallacy.” When Jessica was born, I…
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“You should be careful with your bag,” Jessica says to me. “It’s heavy.” “I will be, sweetie,” I tell her. “And don’t poke yourself with that pen.” “I’ll be careful,” I tell her, tucking the pen in the bag. Not comparing her to a helicopter parent or pointing out that I successfully managed all of…