Jessica is my young adult daughter, born with a devastating neurological condition called tuberous sclerosis that has caused what I call enormous destruction in her life, body, and brain, and which she mostly shrugs off as “my life’s adventure, different from yours.” This is because she is a great deal wiser than I am.
When people say, “I read your story,” I never ask “Which story?” because I always know this is the one they mean:
The essay can be purchased as an ebook or as a paperback, and all proceeds from the sale of the book go to support Jessica. Click here for the Amazon link (Kindle and paperback versions).
For other ebook options, click here.
Thank you—all of you—for your warm thoughts, wishes, and prayers. (Hey, I may not believe in a supreme Deity, but that doesn’t mean One doesn’t believe in me.)
The Tuberous Sclerosis Alliance
This is the only place that had any information or answers for me when Jessica was born. Doctors were stumped, neurologists had no prognosis, and I had no idea what the hell I was supposed to do now.
I’m not a person who will hector others about giving to her pet cause, but if you have some coins jingling in your pocket and aren’t sure what to do with them, this is one organization that does good work. You’ll find them here.